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Justice For Kids With Special Needs
By Miriam Edelson
Print ISBN: 9781894549424
Battle Cries: Justice for Kids with Special Needs is a call to action on behalf of disabled children and their families. Voices of mothers and fathers speak to the joys and challenges they confront in raising their children in a climate of scarce resources.
Author Miriam Edelson lays out a clear and thorough map of the current services and supports available to disabled children and their parents in Canada, followed by a discussion of the various impediments these families face in the effort to achieve true inclusion in society. She explores the challenging lives of families with disabled children in various Canadian locations.
Through interviews and insightful commentary based on Edelson's research and her own personal experience, a picture emerges of the woefully inadequate resources devoted to these families. And yet, this is a hopeful book that, drawing on the current Swedish model of care, provides signposts for a course of action that seeks to improve the lives of these children and their families.
Table of Contents
IntroductionPart I: Mapping the TerrainChapter One: Meeting the Main Characters: A Collection of SnapshotsChapter Two: Services and SupportsChapter Three: Margins and ResistanceChapter Four: Embracing the Social Model of DisabilityChapter Five: Family Relationships, Faith and CommunityChapter Six: Respite Care and Citizen EngagementPart II: Portraits: The Power of NarrativeChapter Seven: Mary Ellen and JeremyChapter Eight: Sharon and ShannonChapter Nine: Lillian and OliverChapter Ten: Mathieu, Aude Catherine and VincentChapter Eleven: Colleen and JohnnyChapter Twelve: Julien and SimonChapter Thirteen: Cheryl and EnoshChapter Fourteen: Sweden's Approach: A Humane Model of CareReflections: Drawing Some ConclusionSome Tips about Advocacy: Finding Services and Getting SupportNotesSelect BibliographyAcknowledgements